Blog, Featured »

[15 Mar 2016 | 35 Comments | ]
European Commission Open Science Policy Platform

The following is my application to join the European Commission Open Science Policy Platform. The OSPP will provide expert advice to the European Commission on implementing the broader Open Science Agenda. As you will see some of us have a concern that the focus of the call is on organisations, rather than communities. This is a departure from much of the focus that the Commission itself has adopted on the potential benefits and opportunities of Open Science. A few of us are therefore applying as representatives of the community of interested …

Blog »

[26 Feb 2016 | One Comment | ]

It has been painful to watch the tensions at the Wikimedia Foundation explode over the last few months and with the stepping down of the Executive Director there seems a mood of conciliation and a desire for WMF to learn from the process. I know next to nothing of the details or the story, so while it is the spur for this post I don’t want to offer any opinions on WMF itself. But the story fits the outline of a pattern I’ve seen in a lot of organisations in the …

Blog, Featured »

[29 Jan 2016 | Comments Off on Taking Culture Seriously: The challenges of data sharing | ]
Taking Culture Seriously: The challenges of data sharing

I promised some thinking out loud and likely naive and uninformed opinion in my plans for the new year. Here’s a start on that with apologies to Science and Technology Studies and Cultural Studies people who’ve probably thought all of this through. Yes, I am trying to get people to do my due diligence literature review for me.
It’s a common strand when we talk about improving data sharing or data management, or access to research, or public engagement…or… “Cultural Change, its hard”. The capitals are deliberate. Cultural Change is seen …

Blog, Featured »

[28 Jan 2016 | Comments Off on Where are the pipes? Building Foundational Infrastructures for Future Services | ]
Where are the pipes? Building Foundational Infrastructures for Future Services

Cite as “Bilder G, Lin J, Neylon C (2016) Where are the pipes? Building Foundational Infrastructures for Future Services, retrieved [date], http://cameronneylon.net/blog/where-are-the-pipes-building-foundational-infrastructures-for-future-services/ ‎”
You probably don’t think too much about where all the services to your residence run. They go missing from view until something goes wrong. But how do we maintain them unless they are identified? An entire utilities industry, which must search for utility infrastructure, hangs in the balance on this knowledge. There’s even an annual competition, a rodeo no less, to crown the best infrastructure locators in the land, rewarding those …

Blog »

[13 Jan 2016 | One Comment | ]

I’m not much for end of year or beginning of year posts but I have found that putting down plans is a good way of holding myself to account (and that a few people out there might help with that job…you know who you are). I also think my use of this space may change a little over the coming year, so for those of you still using RSS (yes! we do still exist!) this may have an impact on including me or not in your selection for 2016.
As it …

Blog, Featured »

[12 Jan 2016 | Comments Off on Making it personal: The rare disease literature sucks | ]
Making it personal: The rare disease literature sucks

I’ve been engaged in different ways with some people in the rare genetic disease community for a few years. In most cases the initial issue that brought us together was access to literature and in some cases that lead towards Open Science issues more generally. Many people in the Open Access space have been motivated by personal stories and losses, and quite a few of those relate to rare genetic diseases.
I’ve heard, and relayed to others how access has been a problem, how the structure and shape of the literature …